Sacha was diagnosed with NEMO from five months old and underwent 3.5 years of intense treatment with multiple surgeries, bone marrow transplants and many other intrusive treatments and procedures. Despite this, Sacha was the funniest, happiest little boy who loved the world around him.

 

He loved to play with dinosaurs, cars and trains. He absolutely loved to read all things Julia Donaldson, with the Gruffalo, Room on a Broom, Stickman and The Highway Rat being some of his favourites.

Sacha loved to watch Paddington Bear, he was so taken with everything Paddington did on his adventures, and even copied his politeness and speech. He also couldn’t get enough dinosaurs, all his clothes had dinosaurs on and he would wonder round the house or the corridors of GOSH roaring his biggest roar and making dinosaur “wootprints” foot prints in our carpet with his little fingers.

 

Sacha absolutely loved life and shared his boundless love with everyone around him. Tragically, he passed away in early June 2024 after contracting an infection, but he faced each day with incredible bravery, strength, and a fighting spirit that inspired all who knew him.